#MnikesaSpeaksOfLiberation

Black Girl In Pink in Paris…with Oxygen

Black Girl In Pink in Paris…with Oxygen

It took me a long time to accept certain things about myself.

A List:

Justin & Me (oh, and her)

Justin & Me (oh, and her)

  1. That I, as a dancer growing up in the Pre-Misty Copeland era 90’s would always have muscular thighs, regardless of the “type” of body that my classical ballet training treasured.

    1. Co-point, along with #1, that I, as a dancer, was still worthy even though I didn’t begin my dance training until 11 years old, much later than most dancers. Worthy enough to dance semi-professionally. Worthy enough to found and run BalletHaven for 7 years, an organization that changed a community.

    2. That it is ok to be the only Black girl in the room; that still doesn’t mean I have to speak on behalf of “all black experience” because Blackness is not a monolith. And I learned that I still have a right to correct you if you call me “articulate” or “well-educated” in said rooms. That does not make me angry, combative or petty, however it might suggest something about you. 😬

    3. That I deserve to be in rooms that matter to me, even if I am the only Black woman there—rooms about education, literacy, women’s & girls’ rights, dance, equity, the arts.

    4. That being an introvert is not a new and trendy thing, but a deep part of my personality that makes “me” make so much more sense. I would say to my younger self, compassionately, “Be at peace. You’re more than ok.” Also, #LongLiveStayingInAndReadingABook.

    5. That some people will always be visibly uncomfortable with the way my oxygen looks—the way the reality of my illness presents itself. The way it means that this is the thing that will likely take my life. And it’s not my responsibility to make them comfortable with it. (Coincidentally, I would like very much not to have to lug Wallie, as my Portable Oxygen Concentrator is called, around with me. He’s heavy, makes my nose run and makes you painfully aware of how truly inaccessible the world is. But, I don’t get that choice. I would like to breathe, soooo…)

      This past October, I remember when we were traveling through France. There was a woman on the train ride from Paris to Avignon. We were in First Class, and I was wearing my oxygen because breathing. She and her partner looked like they were accustomed to traveling in First, but looks are deceiving, which of course is my entire point. What I remember so clearly is the way she kept staring. At me. Conspicuously. Boldy. I don’t know if it was because I was brown (Yes, I was the only one in First.) or because I was in an interracial relationship (Yep. Again, only one.) or because I was the only one with oxygen glued to my face, or because I have beautiful braids with hints of purple and pink mixed in (Yes, I was the only on both of those counts, too.) The point is I didn’t like it. It FELT like she was staring down her nose at me. But as a disabled, Black, interracially married woman, I’ve accepted that I’ve given you lots of reasons to stare. And I may stare back. (Which I did.) 😉

    6. That accepting help, for me, will s̶o̶m̶e̶t̶i̶m̶e̶s̶ often mean that I need the assistance of a wheelchair or scooter. It makes me uncomfortable, and I hate that people stare because after all, I look so “normal” 🙄 without my oxygen on and I can walk. I just can’t walk when it’s for long periods of time (like in museums, parks, zoos, grocery stores, airports, concert halls—you get the picture). So I’m doing what Michelle (THE Michelle, guys. You know theres only one, right?) would do. I lean on my Barack (His name is Justin.). He never makes me feel ugly or small, even in a wheelchair. I mean, look at us in the Louvre with the Mona Lisa! He advocates for me when I’m too tired, angry or stressed out to “people.” I used to think that leaning on someone like this made me a weak woman. I’m glad I’ve grown up from that kind of thinking. And I’m glad we’ve found each other.

    7. That speaking about the freedom of Black and Brown female bodies and minds threatens people. That demonstrating that freedom makes folks uncomfortable. Especially if those bodies are older. Wanna cause a commotion? Be brownish, female, and have something to say without asking permission. If you do it with sexy clothes on (even if you show the same amount that a man shows) you’ll get a bigger reaction. I’m a 41 year old dancer who was told that I would survive to 26—tops—given my diagnosis. So yeah, I’m here for all of the Afro-Carribean, Latinx excellence and thought that went into the 2/2/20 Halftime Show headlined by 2 women who are near-ish my age. I’ve accepted that some people want to argue about it, but I won’t be one of them. Maybe once your body has been through what a brown/black/female/disabled/daily-dying/dancer’s body is subjected to, you wouldn’t want to either.

    8. That though illness meant I had to retire from classroom teaching, and caused a deep depression I didn’t fully comprehend until much later, that wasn’t the end of my story as an educator. It sure felt like a permanent ending when it happened. I felt like I had lost my identity. But there was liberation waiting. I found it in remembering that my heart has always been for the empowerment of people of color and women. I found that my skills were still useful and needed. I remembered what Mufasa told Simba: Remember who you are. Me? I am Mnikesa. I teach people, especially women and people of color, to speak, read, write and listen at deep levels of comprehension because I believe that literacy is liberation.

Portrait of women liberated, lively and fearless. Photo by Getty Images, Hollywood Reporter

Portrait of women liberated, lively and fearless. Photo by Getty Images, Hollywood Reporter

#MnikesaSpeaksOfTravel ♥️ Packing Light

I get obsessed with lists. And order. And more lists. Part of it is personality. Part of it is a recognition (formally subconscious) that when your body is breaking or dying or diseasing at an incurable and unpredictable rate that is completely out of your control, you will search for anything that gives back to you a small sense of the control you’ve lost.

So in my illness, I’ve become a list-lover.

Can’t sleep? Make a list.

Upset? Make a list?

Generalized anxiety or existential ick? Read a list!

(Side Note A: There are some great ones from truly helpful feeds of trusted therapists I follow on IG. Side Note B:Of course, following them isn’t a substitute for going to your own therapist, which I do 2x a week every week. Side Note C: It’s ok if you’re thinking of going, and are scared. I was at first, too. Sometimes I still am! But I wouldn’t change it. Side Note D: The profiles I mentioned of the people I like are here, here, here, here and here.)

So with all this listiness, of course I like packing lists as I prepare to travel. I’ve found my favorite packing app EVER, and it’s been a gift.

But I’ve also noticed that I can never seem to be the girl in the airport who travels with the ultra mini chain purse and one magazine as her carryon. (🤨How?!) Or even the person who bops along the concourse effortlessly—one handed— with their very cute “luggage wardrobe” (no shade, Away Luggage. I really do want my own Wardrobe—particularly the pink carryon and tote🙂). It’s just that when you’re chronically ill like me, you need another whole luggage addendum to your situation, depending on how sick you happen to be at the moment, to carry any of the following items:

  • Meds for the plane (for pain, sleep, digestion, coughing)

  • Daily meds to carryon (approx 12 pills in my case) in case your luggage gets lost

  • batteries for your oxygen to carryon(2-6, weighing about 3 pounds each)

  • charger for oxygen to carryon(weighing about 2 pounds)

  • heat packs to carryon(for heart and lung symptoms; ALWAYS COLD!)

  • mittens to carryon(see above)

  • a blanket (yes, even in Cancun and Maui I need my heating blanket; mercifully I can pack this)

  • Emergency meds (because autoimmunity doesn’t play nice and is unpredictable AF)

    • allergy meds, respiratory infection meds, GI rescue meds, fever reducer, endometriosis emergency meds, extra clothes for explosions out of any orifices

It might be another tote, sizing up your carry-on to a checked piece or simply surrendering to the fact that—no, you can not reasonably negotiate: your 15-pound wheeling oxygen concentrator, a rolling carryon luggage piece, a purse/backpack AND your batteries,charger,plane meds, emergency meds, and other supplies.

In packing this week and looking at lots of fabulous lists by some femme minimalist packers I admire, I realized something: they weren’t exactly for me. I mean they were all aimed at traveling light which is an aspiration of mine. Just like them, I do hate feeling bogged down unnecessarily. But that’s just it! I realized today that I don’t have to. And I wanted you to know that, too. Maybe there’s a “traveling light” for us. Maybe it’s agreeing with ourselves that for each trip (to the mailbox, grocery store, couch or beyond…)we will let go of one expectation or feeling of guilt we’re holding on to from when our bodies were labeled “healthier” or when we didn’t feel “broken” or from any of those other hurtful things we say to ourselves. Because the truth is, I need to take all that heavy paraphernalia with me. And if you’re sick, you do, too. That’s not changing any time soon. But we don’t have to feel bogged down. We can control that part, bit by bit. And, hell. Maybe I’ll make a packing light list for Sick Chicks. 💪🏾 In the meantime, here’s to making peace with how you can #TravelLight.

Simon the Girl Cat practices packing herself into a packing cube.

Simon the Girl Cat practices packing herself into a packing cube.